News
Do you have Nontuberculous
Mycobacterial (NTM) Pulmonary Disease?
How Can I Get a Prescription for ARIKAYCE®?
ARIKAYCE® is currently the only FDA approved drug designed specifically for NTM (MAC) and now available through prescription from your physician for treatment of refractory MAC lung infection in adult patients. This medication is only available through select...
Reflections on Our Physician/Patient Conference
Our continuing education-accredited conference is a groundbreaking opportunity for health care providers, researchers, patients, families, and caregivers to learn about the latest advances in research, treatment, and care from leaders in the field of nontuberculous...
FDA Workshop on Bronchiectasis Drug Development
The Food and Drug Administration is convening a public workshop titled "Development of Inhaled Antibacterial Drugs for Cystic Fibrosis and Non-Cystic Fibrosis Bronchiectasis" on Wednesday, June 27th from 8:30pm to 4:30pm ET. The purpose of this workshop is to...
The Bronchiectasis and NTM Information Line is now open!
NTM Info & Research and the COPD Foundation is happy to announce the release of the Bronchiectasis and NTM Information Line: 1-833-411-LUNG (5864). The Bronchiectasis and NTM Information Line is a toll-free number managed by the C.O.P.D. Information Line for...
UPDATE: FDA Decision on Linhaliq
Aradigm, the company that submitted Linhaliq to the FDA for approval, announced that they had received a complete response letter (CRL) from the FDA stating that they would not approve the treatment at this time. Many of you have communicated recently with the FDA...
Getting Engaged: The Patient Voice
by Amy Leitman At the end of June I attended DIA 2016, the annual conference for the Drug Information Association, as part of their Patient Advocacy Fellowship Program. The Fellowship Program is a major initiative designed to build industry awareness of the...
NORD Physician Guide to NTM
NTM Info & Research partnered with the National Organization for Rare Disorders (NORD) to help publish a Physician Guide to Nontuberculous Mycobacterial Lung Disease. The guide, which was authored by Dr. Leah Lande, is designed to help promote awareness of NTM...
Support Group Corner
Support Groups come in many different forms. Some are large, some small, some meet monthly, some meet only a few times per year, some meet in person, some are on-line only. There are no rules. We would like to introduce you to a group that has found an innovative...
NTMir Presents Research at ATS 2016
At the American Thoracic Society International Conference in May, Amy Leitman from NTM Info & Research, along with Dr. Mehdi Mirsaeidi from the University of Miami, presented the results of a survey on geographic diversity of nontuberculous mycobacteria species...
220000
ESTIMATED CASES
OF NTM IN THE US
IN 2020
8.2 %
THE RISE IN THE
NUMBER OF NTM CASES
EACH YEAR
2.8m
ANTIBIOTIC-
RESISTANT INFECTIONS
IN THE US EACH YEAR