timeline

2003

Launched ntminfo.org website

August 2003

NTM Info and Research Incorporation

2004

Launched first NTM Patient Nutrition Guide

2005

Facilitated availability of clofazimine for NTM patients in the United States

2006

First ParticipAction Hill Day

2007

First NTMir Conference

2008

Funded first ever RIPS™ grant for Water Study

2008

Co-funded Research Grant with American Lung Assn

2008

Funded epidemiology research project conducted by NIAID and Kaiser Permanente

2009

Hosted first science meeting

2011

Expanded Bronchiectasis Registry to include NTM

2013

Began six-year term as member organization of ATS Patient Advisory Roundtable (PAR)

2014

Founding member of NTM Research Consortium

2014

Became member organization of NORD and EURORDIS

2014

Hosted science meeting at ATS International Conference

2015

FDA-led Patient-Focused Drug Development (PFDD) meeting on NTM Lung Disease

2016

Presented research at ATS on geographic distribution of NTM in the United States

2018

Represented the patient voice at advisory committee meeting for first-ever approved treatment for NTM lung disease

2018

ARIKAYCE™ approved

2019

FDA-led meeting on the development of antibacterial drugs for NTM lung disease

2019

NTMinfo.org translated into multiple additional languages

2020

Hosted first-ever virtual patient conference

2020

Launched Nutrition and Emotional Wellbeing webinar series

April 2021

Launched NTM Connect