Privacy Policy

The mission of NTM Info & Research (NTMir) is to help patients living with nontuberculous mycobacterial (NTM) disease and other related comorbid illnesses by advocating for better education, early detection, and research towards the development of new therapeutics. By working with patients, developing a network of support groups, engaging our constituencies to increase awareness of the disease, providing education opportunities about the disease, and demonstrating leadership at all levels to meet our goals, we strive to accelerate the development of new treatments that will help patients.

NTMir has created this privacy statement in order to demonstrate our firm commitment to privacy. The following discloses our information gathering and dissemination practices for this website. NTMir is committed to protecting your privacy by developing and utilizing technology that gives you the safest online experience. We will use your information as allowed by law and our values to further our mission.

NTMir collects and uses your personal information that you provide to us in the following ways:

  • To inform you of research updates, educational events, or clinical studies in the NTM and related areas;
  • Contacting you regarding surveys to conduct research about your opinion of current resources or of potential new resources that may be available;
  • All surveys posted on our website are optional and you are not required to participate.
  • Contacting you to respond to your requests or inquiries and provide support;
  • Analyzing the NTM community experience, including member experience and communications via NTM Connect, our online community; and
  • For any other lawful, legitimate business purposes.

NTMir does not share, sell, rent, or lease its customer lists to third parties.

NTMir does not collect, use or disclose sensitive personal information, such as race, health information, religion, or political affiliations.

We are committed to maintaining the security of personal information. Our data security policies and arrangements are reviewed regularly. Although it is not possible to guarantee that security measures employed will be sufficient to protect personal information, we use enterprise-grade administrative, technical, and physical security measures intended to protect against loss, misuse, improper access, disclosure, alteration, or destruction of personal information. These measures include, but are not limited to, encryption of sensitive information both in-transit and at-rest, and the tokenization of credit card numbers. Additionally, sensitive information is protected at-rest by encryption, firewalls, and real-time intrusion detection/prevention systems and restricting access to this information to appropriate personnel.

Donor Specific Policies

NTMir does not sell, rent or lease its donor lists or giving histories to third parties. If you request another individual be informed of your donation, we will provide your name only; your contact information and the donation amount will not be shared. If you donate towards an event or campaign that acknowledges donors, your name may appear in associated materials unless you request otherwise. To request that a donation is not acknowledged publicly, indicate that it is anonymous at the time of the donation or via email at ntmmail@ntminfo.org

NTMir retains personal information, such as mailing addresses, to analyze donor demographics and for future solicitations. To review your personal information that NTMir has collected and request corrections, please email ntmmail@ntminfo.org.

Links to Other Websites or Mobile Applications

Our Websites, including ntminfo.org and other affiliated websites, may contain links to other external websites or mobile applications owned and operated by third parties. A link to another website or mobile application does not imply an endorsement of that website’s or mobile application’s content or services. Our Website’s Privacy Policy does not apply to, and we are not responsible for, the privacy practices of third-party websites or mobile applications that are not owned by us. NTMir encourages you to review the privacy policies of third-party websites you choose to link to from the Website so that you can understand how those third-party websites collect, use and share your information. When you use a link online to a third-party website, you will be subject to that website’s privacy and security practices, which may differ from our Website. NTMir is not responsible for the privacy policies or other content on websites outside of the Website.

QUESTIONS OR CONCERNS?

If you have any questions, concerns or comments about our privacy policies or practices, please contact us at ntmmail@ntminfo.org or 305-901-4686, ext. 126 or 132.