Patient Support & Disease Information Organizations and Websites
About NTM: https://www.aboutntm.com/
Alpha-1 Foundation: http://www.alpha1.org/
American Association for Marriage and Family Therapy: 703-838-9808 https://www.aamft.org//
American Psychiatric Association: 202-559-3900 https://www.psychiatry.org/
American Psychological Association: 800-374-2721 https://www.apa.org/
Association for Behavioral and Cognitive Therapies: 212-647-1890 https://www.abct.org/Home/
Bronchiectasis Info & Research: https://bronchiectasisinfo.org/
Center for Nontuberculous Mycobacteria and Bronchiectasis: https://www.hopkinsmedicine.org/pulmonary/patient-care/mycobacteria-bronchiectasis
CF Vests for Life: https://www.facebook.com/CFVests4Life/
COPD Foundation: http://www.copdfoundation.org/
Cystic Fibrosis Foundation: http://www.cff.org/
European Lung Foundation www.europeanlung.org
Inspire Online Patient Community: https://www.inspire.com/
Lung Foundation Australia: http://lungfoundation.com.au/
NTM & Bronchiectasis/NTM Connect Community: https://connect.ntminfo.org
NTM Copay Assistance Program: https://enroll.tafcares.org/TAF_ProgramInformation?Id=uV1Im6mIV4ygTUlXvQ7lMubAp9mnsC%2BRQlizCM5h9MW4ClKhnTrpDrjI9nF4f21O
Primary Ciliary Dyskinesia: http://www.pcdfoundation.org/
The BE CLEAR Method to Living with Bronchiectasis:
Purchase the book: https://amzn.to/3EuBoKJ
Visit the BE CLEAR YouTube channel: https://www.youtube.com/watch?v=t8Fpvf5sTuc
Visit the Author’s Website: https://www.letsbecleartoday.com/#/
Visit the Author’s Blog: https://www.letsbecleartoday.com/be-clear-blog
Government Agencies
U.S. Food & Drug Administration (FDA): https://www.fda.gov
FDA MedWatch Voluntary Adverse Event Reporting: https://www.accessdata.fda.gov/scripts/medwatch/index.cfm?action=reporting.home
Department of Health & Human Services: https://www.hhs.gov
Federal Aviation Administration (FAA): https://www.faa.gov/about/initiatives/cabin_safety/portable_oxygen/
National Institutes of Health (NIH): https://www.nih.gov/
Online Patient Resources
AboutNTM.com: https://www.aboutntm.com
Aspergillus & Aspergillosis Website: https://www.aspergillus.org.uk/
Medication Reminder: http://www.forgettingthepill.com/index.php
NTM & Bronchiectasis/NTM Connect Community: https://connect.ntminfo.org
Online Medication Schedule: https://secure.medactionplan.com/mymedschedule/
Healthcare & Insurance Information:
Maxor Specialty Pharmacy: http://maxor.com
Medical & Research Institutions:
Georgetown University: https://www.medstarhealth.org/doctor/dr-anne-elizabeth-odonnell-md/#q={}
Mayo Clinic: https://www.mayoclinic.org/patient-visitor-guide/minnesota/becoming-a-patient
National Heart, Lung & Blood Institute (NIH): https://www.nhlbi.nih.gov/science/chronic-airway-infection
National Institute of Allergy & Infectious Diseases (NIH): https://www.niaid.nih.gov/research/lab-clinical-infectious-diseases<https://www.niaid.nih.gov/research/lab-clinical-immunology-and-microbiology>
National Jewish Health: http://www.nationaljewish.org/
NYU Langone Medical Center: https://med.nyu.edu/medicine/pulmonary/
Oregon Health & Science University: http://www.ohsu.edu/xd/education/schools/school-of-medicine/departments/clinical-departments/medicine/divisions/infectious-diseases/
UC San Diego: http://pulmonary.ucsd.edu<http://pulmonary.ucsd.edu/>
University of Pennsylvania: https://www.pennmedicine.org/for-patients-and-visitors/find-a-program-or-service/harron-lung-center/mycobacterial-disease-and-chronic-respiratory-infections
University of Texas Tyler: http://maclungdisease.org/
