by support | Nov 28, 2022 | Uncategorized
NTM Info & Research Awards Grant to Oregon Health & Science University Study Will Assess Efficacy of Hypertonic Saline in Treatment of Pulmonary NTM Disease CORAL GABLES, FL, November 24, 2020 – NTM Info & Research (NTMir), the national nonprofit...
by support | Nov 28, 2022 | Uncategorized
NTM Info & Research Welcomes Attorney and Rare Disease Advocate, Candace Lerman to Board of Directors NTM Info & Research (NTMir) is pleased to announce the appointment of Candace Lerman, Esq. to the Board of Directors. Ms. Lerman is an attorney, consultant,...
by support | Nov 28, 2022 | Uncategorized
Support Groups come in many different forms. Some are large, some small, some meet monthly, some meet only a few times per year, some meet in person, some are on-line only. There are no rules. We would like to introduce you to a group that has found an innovative way...
by support | Nov 28, 2022 | Uncategorized
NTM Info & Research partnered with the National Organization for Rare Disorders (NORD) to help publish a Physician Guide to Nontuberculous Mycobacterial Lung Disease. The guide, which was authored by Dr. Leah Lande, is designed to help promote awareness of NTM...
by support | Nov 28, 2022 | Uncategorized
by Amy Leitman At the end of June I attended DIA 2016, the annual conference for the Drug Information Association, as part of their Patient Advocacy Fellowship Program. The Fellowship Program is a major initiative designed to build industry awareness of the...
by support | Nov 28, 2022 | Uncategorized
Aradigm, the company that submitted Linhaliq to the FDA for approval, announced that they had received a complete response letter (CRL) from the FDA stating that they would not approve the treatment at this time. Many of you have communicated recently with the FDA...