by support | Nov 28, 2022 | Uncategorized
Support Groups come in many different forms. Some are large, some small, some meet monthly, some meet only a few times per year, some meet in person, some are on-line only. There are no rules. We would like to introduce you to a group that has found an innovative way...
by support | Nov 28, 2022 | Uncategorized
NTM Info & Research partnered with the National Organization for Rare Disorders (NORD) to help publish a Physician Guide to Nontuberculous Mycobacterial Lung Disease. The guide, which was authored by Dr. Leah Lande, is designed to help promote awareness of NTM...
by support | Nov 28, 2022 | Uncategorized
by Amy Leitman At the end of June I attended DIA 2016, the annual conference for the Drug Information Association, as part of their Patient Advocacy Fellowship Program. The Fellowship Program is a major initiative designed to build industry awareness of the...
by support | Nov 28, 2022 | Uncategorized
Aradigm, the company that submitted Linhaliq to the FDA for approval, announced that they had received a complete response letter (CRL) from the FDA stating that they would not approve the treatment at this time. Many of you have communicated recently with the FDA...
by support | Nov 28, 2022 | Uncategorized
NTM Info & Research and the COPD Foundation is happy to announce the release of the Bronchiectasis and NTM Information Line: 1-833-411-LUNG (5864). The Bronchiectasis and NTM Information Line is a toll-free number managed by the C.O.P.D. Information Line for...
by support | Nov 28, 2022 | Uncategorized
The Food and Drug Administration is convening a public workshop titled “Development of Inhaled Antibacterial Drugs for Cystic Fibrosis and Non-Cystic Fibrosis Bronchiectasis” on Wednesday, June 27th from 8:30pm to 4:30pm ET. The purpose of this workshop is...
