PRIVACY POLICY
The mission of NTM Info & Research (NTMir) is to help patients living with nontuberculous mycobacterial (NTM) disease and other related comorbid illnesses by advocating for better education, early detection, and research towards the development of new therapeutics. By working with patients, developing a network of support groups, engaging our constituencies to increase awareness of the disease, providing education opportunities about the disease, and demonstrating leadership at all levels to meet our goals, we strive to accelerate the development of new treatments that will help patients.
NTMir has created this privacy statement to demonstrate our firm commitment to privacy. The following discloses our information gathering and dissemination practices for this website. NTMir is committed to protecting your privacy by developing and utilizing technology that gives you the safest online experience. We will use your information as allowed by law and our values to further our mission.
NTMir collects and uses your personal information that you provide to us in the following ways:
- To inform you of research updates, educational events, or clinical studies in the NTM and related areas;
- Contacting you regarding surveys to conduct research about your opinion of current resources or of potential new resources that may be available;
- All surveys posted on our website are optional and you are not required to participate.
- Contacting you to respond to your requests or inquiries and provide support;
- Analyzing the NTM community experience, including member experience and communications via NTM Connect, our online community; and
- For any other lawful, legitimate business purposes.
NTMir does not share, sell, rent, or lease its customer lists to third parties.
NTMir does not collect, use, or disclose sensitive personal information, such as race, health information, religion, or political affiliations.
Donor Specific Policies
NTMir does not sell, rent, or lease its donor lists or giving histories to third parties. If you request another individual be informed of your donation, we will provide your name only; your contact information and the donation amount will not be shared. If you donate towards an event or campaign that acknowledges donors, your name may appear in associated materials unless you request otherwise. To request that a donation is not acknowledged publicly, indicate that it is anonymous at the time of the donation or via email at
nt*****@nt*****.org
.
NTMir retains personal information, such as mailing addresses, to analyze donor demographics and for future solicitations. To review your personal information that NTMir has collected and request corrections, please email
nt*****@nt*****.org
.
Links to Other Websites or Mobile Applications
Our websites, including ntminfo.org and other affiliated websites, may contain links to other external websites or mobile applications owned and operated by third parties. A link to another website or mobile application does not imply an endorsement of that website or mobile application’s content or services. Our Website’s Privacy Policy does not apply to, and we are not responsible for, the privacy practices of third-party websites or mobile applications that are not owned by us. NTMir encourages you to review the privacy policies of third-party websites you choose to link to from the Website so that you can understand how those third-party websites collect, use, and share your information. When you use a link online to a third-party website, you will be subject to that website’s privacy and security practices, which may differ from our website. NTMir is not responsible for the privacy policies or other content on websites outside of the Website.
Special Provisions Related to Fundraising
In addition to what is described elsewhere in this Privacy Statement, NTM Info & Research has some provisions applicable to personal information that we collect and use through our fundraising operations:
We may collect donors’ personal information such as names, company names, titles, addresses, phone numbers, email addresses, payment information, relationship to NTMir participation information, etc. through online or offline communications.
We use personal information about donors to respond to inquiries, process donations, issue receipts, help decide who will receive future solicitations (including matching gift requests), organize fundraising events, assess the effectiveness of fundraising or services, inform donors of new activities and services, communicate with event attendees during events, and similar activities.
It is our policy to honor any no-solicitation request as quickly as possible. We are legally required to internally retain some records related to donations made, so we may not be able to delete your name at the time of your request. Instead, we flag records internally so that we can honor no-solicitation requests by suppressing mailings and other contacts.
We do not knowingly contact or solicit donations from individuals under 18 years of age.
Some of the fundraising sections of our Site make it convenient for you to solicit donations for NTMir from your own friends and contacts. If you choose, you can provide name and contact information for your contacts you want to email to ask for donations.
Protecting Personal Information
We are committed to maintaining the security of personal information. Although it is not possible to guarantee that security measures employed will be sufficient to protect personal information, we use administrative, technical, and physical security measures intended to protect against loss, misuse, improper access, disclosure, alteration, or destruction of personal information, and we review our data security arrangements regularly. These measures include, but are not limited to, encryption of sensitive information both in-transit and at-rest, and the tokenization of credit card numbers. Additionally, sensitive information is protected at-rest by firewalls and intrusion detection/prevention systems and restricting access to this information appropriate personnel.
