Timeline

Did you know most people with
NTM also have Bronchiectasis?

2003
 

Launched ntminfo.org website

August 2003
 

NTM Info and Research Incorporation

2004
 

Launched first NTM Patient Nutrition Guide

2005
 

Facilitated availability of clofazimine for NTM patients in the United States

2006

First ParticipAction Hill Day

2007
 

First NTMir Conference

2008
 

Funded first ever RIPS™ grant for Water Study

2008
 

Co-funded Research Grant with American Lung Assn

2008
 

Funded epidemiology research project conducted by NIAID and Kaiser Permanente

2009
 

Hosted first science meeting

2011
 

Expanded Bronchiectasis Registry to include NTM

2013

Began six-year term as member organization of ATS Patient Advisory Roundtable (PAR)

2014

Founding member of NTM Research Consortium

2014
 

Became member organization of NORD and EURORDIS

2014
 

Hosted science meeting at ATS International Conference

2015

FDA-led Patient-Focused Drug Development (PFDD) meeting on NTM Lung Disease

2016
 

Presented research at ATS on geographic distribution of NTM in the United States

2018

Represented the patient voice at advisory committee meeting for first-ever approved treatment for NTM lung disease

2018
 

ARIKAYCE™ approved

2019
 

FDA-led meeting on the development of antibacterial drugs for NTM lung disease

2019
 

NTMinfo.org translated into multiple additional languages

2020
 

Hosted first-ever virtual patient conference

2020
 

Launched Nutrition and Emotional Wellbeing webinar series

April 2021
 

Launched NTM Connect

2023
 

First World NTM Awareness Day