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Jacquesmoss, I hope you didn’t take my email the wrong way, which is so easy to do when you can’t clarify how you mean something. I think if you go to all 3 of the big centers for treatment they will all have a different opinion and treatment will be different. Guess it’s that way with any disease. The main thing is you are going to one of the top centers for treatment and you are very knowledgeable and proactive regarding your disease.
At the Denver Convention last year Dr Huitt (NJH) told us that they were aware of the current drugs available to treat NTM disease were very strong to tolerate but that was all they had to work with. There are several new drugs on the horizon but won’t be available for another few years. This is the very reason that all of us need to be proactive in trying to educate our Government and the public about NTM disease so more money becomes available for research. Carole