You both bring up some very good ideas and points. I will get a hold of the eye and hearing doctor for copies of the tests. Then I will have one for myself,send one to the ID, one ot the pulmonologist and one to Dr Huitt and NJH. The notebook is a very good idea also.
I am currently on avelox, azithromyicin, amikacin IV, and waiting to receive the clofaximine (sp.?). I was on the big 3, but the CT’s continued to get worse. I feel like I have a few more “better” days with this combination, hence my reluctance to mention these to the doctors. NJH seems to take you off the meds so quickly …but I guess then that particuliar side effect that I mentioned was dangerous, so that’s why they would do it.