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Reply To: Public Awareness

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No, I don’t believe the American Lung Association answered your question at all. It was simply a stock response. I’ve written to them several times and haven’t received any answer. In fact, in 2004 I went through pulmonary rehab and the nurse in charge had never heard of NTM. Moreover, a doctor from the local hospital who came to speak to us said I probably had “colonization of my lungs”, and implied I wasn’t to worry. My support group meets at an American Lung Assocation Office and there’s not a shred of information on NTM. It’s truly the “secret” disease, perhaps in part because mostly women are afflicted, and older women at that, but not entirely by any means! I’ve written to Dr. Gupta on CNN, but no response there either, nor from Oprah, but I’ll keep trying. We definitely need more publicity!