Sounds like NIH would be your best bet then, if you can ever get in to one of their trials,
since Iskarda says the meds would then be free. Maybe I should try to go to NIH too, not because of the meds, but because they would be easier to get into (??) than NJM and would not require insurance approval. How hard is it to get in to NIH for a trial, or how long does it take once you apply, Iskarda or others?