Hi All, I applied and was excepted right away. I was told I would be evaluated in 18 months because they expected me to get better. I had Kansasi then, now I also have abscessus.
I worry every day about it. I also have something new going wrong with my fingers..I don’t have Rh, I know how slow that terrible desease is. Has anyone had trouble with fingers that will not bend anymore, I can’t hold anything in my right hand at all. I do think one of the meds I was on started this. When I was on ethambutol and rifampin, I hurt in every bone, now its mostly my fingers.
I went to a rhumatologist and he gave it a name but said it shouldn’t progress this fast. He’s taking tests to see if the meds may have started this joint problem. Has anyone hd this problm from the meds? My hands will be ueless at this rate. Thanks for your help. Cathy