NTM Info & Research Welcomes Brandon Mitchell to Board of Directors Brandon Mitchell is the Director of Miami at Venture For America (VFA), a non-profit organization that creates economic opportunity in American cities by mobilizing the next generation of entrepreneurs and equipping them with the skills and resources they need to create jobs. At VFA, he...Read More
NTM Info & Research Welcomes Attorney and Rare Disease Advocate, Candace Lerman to Board of Directors NTM Info & Research (NTMir) is pleased to announce the appointment of Candace Lerman, Esq. to the Board of Directors. Ms. Lerman is an attorney, consultant, and author of the rare disease blog, RareCandace.com. She earned her Juris Doctorate...Read More
NTM Info & Research Awards Grant to Oregon Health & Science University Study Will Assess Efficacy of Hypertonic Saline in Treatment of Pulmonary NTM Disease CORAL GABLES, FL, November 24, 2020 – NTM Info & Research (NTMir), the national nonprofit organization advocating on behalf of patients with nontuberculous mycobacterial (NTM) lung disease, announces they have...Read More
NTM Info & Research (NTMir), the national nonprofit organization advocating on behalf of patients with nontuberculous mycobacterial (NTM) lung disease, applauds the European Commission’s decision to grant marketing authorization for ARIKAYCE® Liposomal 590 mg Nebuliser Dispersion (“ARIKAYCE”) for the treatment of nontuberculous mycobacterial (NTM) lung infections caused by Mycobacterium avium complex (MAC) in adults with...Read More
Dear Friends of NTM Info & Research, It is with a mixture of gratitude and sadness that I announce the retirement of Philip Leitman as President of NTM Info & Research. Philip, who co-founded NTMir with his late wife, Fern, will continue as President Emeritus and a valued Board member. For almost two decades, Fern...Read More
Most of us will be staying away from other people and in our homes for the next several weeks (at least), but in addition to taking a stroll outside (staying appropriately distanced from others), there are some great virtual activities you can partake in online. Many public libraries have gone digital; you can become a...Read More
The FDA workshop on “The Development of Antibiotics for the Treatment of NTM Disease” on April 8, 2019 was very successful, with more than 100 people attending in person. The agenda focused on issues surrounding clinical trials and the development of a validated Patient-Reported Outcome (PRO) tool. Panelists included experts in NTM and in PRO,...Read More
The Food and Drug Administration is convening a public workshop titled “Development of Inhaled Antibacterial Drugs for Cystic Fibrosis and Non-Cystic Fibrosis Bronchiectasis” on Wednesday, June 27th from 8:30pm to 4:30pm ET. The purpose of this workshop is to discuss the clinical trial design challenges and future considerations for inhaled antibacterial products to treat cystic...Read More
WHAT IS NTM?
“NTM” is short for Nontuberculous Mycobacteria. NTM disease is a serious chronic lung illness.