Aradigm, the company that submitted Linhaliq to the FDA for approval, announced that they had received a complete response letter (CRL) from the FDA stating that they would not approve the treatment at this time. Many of you have communicated recently with the FDA about the unmet needs for bronchiectasis patients. You told them your...Read More
NTM Info & Research and the COPD Foundation is happy to announce the release of the Bronchiectasis and NTM Information Line: 1-833-411-LUNG (5864). The Bronchiectasis and NTM Information Line is a toll-free number managed by the C.O.P.D. Information Line for peer-to-peer information and referrals on Bronchiectasis and NTM by patients and caregivers. Callers receive one-on-one...Read More
by Amy Leitman At the end of June I attended DIA 2016, the annual conference for the Drug Information Association, as part of their Patient Advocacy Fellowship Program. The Fellowship Program is a major initiative designed to build industry awareness of the importance of patient engagement. The conference itself had a number of sessions...Read More
At the American Thoracic Society International Conference in May, Amy Leitman from NTM Info & Research, along with Dr. Mehdi Mirsaeidi from the University of Miami, presented the results of a survey on geographic diversity of nontuberculous mycobacteria species among NTM patients in the United States. The survey, which was conducted in late 2015 and...Read More
NTM Info & Research partnered with the National Organization for Rare Disorders (NORD) to help publish a Physician Guide to Nontuberculous Mycobacterial Lung Disease. The guide, which was authored by Dr. Leah Lande, is designed to help promote awareness of NTM lung disease among health care professionals in order to reduce time to diagnosis and...Read More
Support Groups come in many different forms. Some are large, some small, some meet monthly, some meet only a few times per year, some meet in person, some are on-line only. There are no rules. We would like to introduce you to a group that has found an innovative way to make it work for...Read More
You can do your everyday shopping and great gift-giving while supporting NTM Info & Research! NTMir is able to sell gift cards with no activation fees to major national and regional retailers. In return, the retailers donate a percentage back to our organization. In 2013, a handful of people took advantage of this program with...Read More
WHAT IS NTM?
“NTM” is short for Nontuberculous Mycobacteria. NTM disease is a serious chronic lung illness.