NTM Info & Research Welcomes Attorney and Rare Disease Advocate, Candace Lerman to Board of Directors
NTM Info & Research (NTMir) is pleased to announce the appointment of Candace Lerman, Esq. to the Board of Directors.
Ms. Lerman is an attorney, consultant, and author of the rare disease blog, RareCandace.com. She earned her Juris Doctorate with a concentration in Health Law at the Shepard Broad School of Law at Nova Southeastern University and a certificate in Healthcare Compliance from Seton Hall University School of Law. In addition, she holds a Bachelor’s and Master’s degree in International Affairs from Florida State University.
As a rare disease patient, Candace researched and twice repurposed a drug to put her rare blood disorder, Immune Thrombocytopenia (ITP), into remission. Inspired by her patient experience, she launched the ITP Patient Driven Research Initiative, which works with multiple stakeholders to improve treatments for the ITP community. She works closely with members of Congress on federal healthcare policy and can often be found on Capitol Hill.
“I am pleased to welcome Candace as a new Board member and look forward to working with her,” said Amy Leitman, President of NTMir. “Candace brings to the table a unique and powerful combination of knowledge, experience, and empathy which will further enhance the work we do in furtherance of our mission on behalf of our patient community.”
In addition to practicing law, Candace consults on projects on topics ranging from patient registries, natural history studies, clinical trial design, patient engagement, Real World Evidence, and patient assistance programs.